About My Bar Mitzvah
Project
Welcome.
I created this website to let you know about my Bar Mitzvah Project. This November, I will become a bar mitzvah. For my mitzvah project I have decided to raise money for APBDRF by having friends and family sponsor me biking 36 (double chai) miles with my family on October 18th. APBDRF raises money for research on Adult Polyglucosan Body Disease (APBD), a disease that has unfortunately affected a number of my family members, including my
Zeidy Michael.
I hope you will support my fundraising!
-Elliott Weiss
About APBD
Adult polyglucosan body disease (APBD) is a condition that affects the nervous system. People with this condition have problems walking due to reduced sensation in their legs (peripheral neuropathy) and progressive muscle weakness and stiffness (spasticity).
APBD is an autosomal recessive disorder that is caused when a person inherits genes from both parents containing one or more loss-of-function mutations in the gene GBE1 which encodes for glycogen branching enzyme, also called 1,4-alpha-glucan-branching enzyme.
Almost everyone diagnosed with APBD is an Ashkenazi Jew.
Help support my project
To donate, please click on the link below.
We greatly appreciate donations of all sizes.
About the bike ride
On October 18, 2020, my family and I will do a 36 (double chai) mile bike ride through central park. That is 6 loops through the park.
Below is a page where you can donate money to support this. All money will go towards research for APBD.
Why biking? I have been biking with my family since I was little. It has become one our favorite family activities.
I hope you will sponsor my ride.